They took out Jake's original chest tube this morning. The site was looking pretty yucky. He doesn't have any signs of infection but they will look at it Monday morning and if it has not gotten any better they may put him on antibiotics just in case.
|No more Blake Drain.|
I totally get the mom of the year award because I actually broke his chest tube today. Thank GOD it didn't pull out of his chest. Jake hasn't wanted to walk as much today. I think he is sore from where they took the tube out and we were up and walking a lot the day before. I was making him walk and he was crying and reaching up for me to pick him up. I leaned down to give him a hug and then went to pick him up. As soon as I started to lift I heard a pop. I looked down and sure enough there was fluid on the floor. OH CRAP!The tube had gotten caught under my shoe. So I had the front desk call the nurse. Thankfully it popped between two sections of the tube. The nurse called CT surgery and they talked her through rigging it so it would still work until they could come fix it tomorrow. It is still draining but it can kink easier so I have been paranoid about it all night.
|Broken tube. Nice job mom!|
I am actually shocked Jake has not tried to pull anything off of him. He has leads all over his chest, bandages and the chest tube. He has to keep it covered. If you take off his shirt he says "Shirt" and if you lift it he pulls it right down. He also has to have the "No-No" on his IV. IF it is off he points to it and shows you to put it on. I think he just don't want to see the stuff because it upsets him. I am just thankful he isn't trying to pull it out. He is picking at his incision so we have been trying to keep that covered.
Physically Jake is great. Yesterday he climbed a big flight of stairs all the way up and down for Physical Therapy. He did it without any problems and didn't fuss at all. The physical therapist said he met all of the goals she had for him and he didn't need any PT anymore!
We also stopped by the playroom yesterday and participated in Music therapy. Jake loved it. He hit the drum, sang songs and played the shakers. He met a few new friends as well. During one of our many trips to the playroom we met a 14 year old boy named Tom who also has HLHS. He is such a cool kid and it is so great to talk to him and see how well he is doing. Jake didn't want to walk as much today but like I said I think he is sore. We took him on wagon rides all day. He wakes up pointing to it and saying "Ride". He LOVES the wagon. It also gives us a way to pass the time.
The best news of the day was that his heart echo looked perfect! His fontan pressures are just where they want them and everything looked great. So between the great chest x-ray and awesome heart echo I think overall today was a great day!
|Brothers <3 i="">|
|Thank you for visiting Jackie and Julia!|