We are officially Post-Fontan!!!!
We have dreamed of this day since Jacob was in my belly and we found out he had HLHS. We knew he would need 3 open heart surgeries to survive. Back then it seemed so far away. The day we could be Post-Fontan, the day we would no longer have this surgery looming over us. That day is here. We did it, we are officially Post-Fontan!
Honestly, part of me is nervous because he is doing so well. I keep waiting for something to happen. Thankfully he has been stable and has done better then I could have imagined.
We started off the day by running late. It never fails, our alarm clocks didn't go off and the iPad I set as a back up ran out of power and turned off. So we woke up 3 minutes before we were supposed to be there. I only woke up then because my mom happened to wake up and see what time it was. Thankfully we were right down the street at the Ronald McDonald House. We got dressed, parked and made it upstairs in the hospital in 20 minutes! He was having his MRI study first then going straight into his Fontan. They gave him versed to calm him down before we went and boy did it work. He was punch drunk and laughed the whole way down the hall as they were wheeling him to the OR. He kept saying "Weeeeeeeee" It was adorable! I was starting to feel the tears coming as I kissed him good-bye then I turned around and saw the doctors open the doors and Jake Pointed down the hall. It was like he was saying "Lets do this". I couldn't help but smile. Off he went, my amazing strong boy.
|Dr. Spray, Jacob's Surgeon|
We are so blessed to have him as Jacob's Surgeon.
He is not only one of the best pediatric heart surgeons in the country, but he is a great guy too!
He is not draining that much blood into the chest tube which is great. This may increase tomorrow as his body adjusts to the new pressure in his body. If he continues to do well they are going to shut off the sedation tomorrow, wake him up and get him moving more. The plan is to remove the inter-cardiac line tomorrow and possibly his art line. The chest tube will stay in for a while but it is really small and can be pinned to his pants so he can walk. They said they will get him up and walking around tomorrow or Saturday depending on if his art line can come out or not.
The plan is to keep him sedated and calm tonight. He is waking up once in a while but I can easily calm him right back to sleep.
Thank you so much for the continued prayers for our precious little warrior. He continues to amaze me with his strength and will to fight. The next few days will be rough but I will try and update when I can.