Post Fontan Day 15
His buddy Sophia went home today and we seem to do everything at the same time so maybe that is a good sign. Another little boy who was here for the Fontan and went home last week came back tonight because of the fluid. It scares me because I know it can come back anytime and he still has some but I know they won't send him home unless they are sure. The fluid will take a while to reabsorb and he will be on diuretics for quite some time to make sure it stays away. If we do go H_____ tomorrow then we will go in for a chest x-ray at our local hospital on Monday morning. We will have to do a lot of follow up to make sure we monitor the lungs and fluid.
Jake is beyond ready to get out of here. Tonight he literally tried to jump OFF his bed. He gave me a sly grin and I noticed his legs were hanging off the bed and he was scooting off. I ran over to catch him. I have since lowered his bed as much as I could and warned all of the nurses that he is crazy lol. He has been out of bed and running around most of the day. He just looks awesome. Love my boys so much.
I hope to write tomorrow from my own home but we will see what the xray shows. Until then here are some pictures of my little monster from today. Enjoy.
|Laughing with a mouth full of food!|
|Looking for a way to escape.|
|Crazy Man behind the wheel :)|