Sunday, February 7, 2010

CHD Awareness Week Feb 7th through 14th

It is the first day of Congenital Heart Defect Awareness Week. I wanted to share some video's about HLHS and what these brave kids go through to survive. They go through more in their first few years of life than we do in a lifetime.

1 in 100 babies have a CHD. That is around 40,000/year. Of those 40,000, 4,000 will not live to see their first birthday. I pray that more awareness leads to more funding for research for these amazing kids. Jacob is 1 in 100 and I am so proud to be his mom and his voice.

Thank you for helping support CHD Awareness and for all of the prayers for Jacob. Please also keep all of the other amazing heart babies in your prayers. Ruthie is awaiting a new heart, Lorenzo is going on his 4th week in the hospital for a leaky valve, Derrick just had his stage 2 surgery and is doing great and Cameron is getting ready for his second stage surgery and also dealing with a clot/absess from a cath procedure. And pray for all of the other families who are fighting this battle.

Warning: These video's may be hard to watch, but these stories need to be told in order to spread awareness. We NEED more research for CHD so that we can help these babies. There is no cure for CHD but there is hope...

Children's Heart Foundation Commercial

A window into our world:
Please help...

One Fight
Story of Derrick Carter's journey with CHD. He is such an amazing little boy who has had his first two surgeries and always has a smile on his face. He gives our family so much hope!
Derrick's Story

A story of beating the odds and what hope, prayer and love can do:

This is the struggle that every HLHS child goes through.
The video is for educational purposes only. It is licensed and may not be used for any other purposes other than spreading CHD Awareness.

CHD Awareness Montage
Made by Lauren Celeskey, a 22yr. old CHD Survivor with Tricuspid Atresia aka HRHS.
View Video

Video by Samantha Lee Billings- Awareness for CHD babies

Cora's Story
This is why Pulse Ox testing should be mandatory before newborns are sent home. It is a simple test that could save so many lives. Let Cora's story make a difference. Ask for the test.
Watch Cora's Story


  1. Thank you for sharing this. I'm so glad you found my site so that I could be with you and Jacob from the start. I'm adding a link to your blog from my friends of Cora page so others can learn about Jacob too!

  2. Thank you for sharing Jacob's story as well. I will ad your video about Cora on this post also. I am so sorry for your loss. Thank you for fighting for pulse ox testing. It should be mandatory and I will do what I can to spread awareness as well!