Wednesday, March 24, 2010

A Better Day!

Our little fighter did so much better today! I am so proud of him.

Yesterday was very scary for Jacob and all of us. Not only did he have to have a stint placed but his lung function was really bad. He was on 100 percent vent and oxygen and still couldn't get his SATS balanced. The x-ray showed a lot of fluid on his lungs and we were not sure if was going to make it. It was very touch and go.

However he did level out and had a very peaceful night and a great day today!

The fluid on his lungs is not completely gone but it is coming off which is good. His x-rays look much better. He is on a diuretic and is having very wet diapers. Speaking of which I got to change his diaper today! Funny how the little things make us so happy. They are hoping the fluid will be completely gone in a day or two.

He had an extensive heart echo and everything looked good. The stent they placed looks good and the heart is functioning the way they need it to right now.

His Oxygen levels have been great all day. He is off of Oxygen and breathing room air. The vent is down to 20%. He has been trying to breath on his own so they changed the sensitivity of the vent so that he is able to breath some on his own and his levels are still doing great. The vents pressure is still a little high so they would like to see that come down a little because right now his lung function is still not where they want to see it, baby steps.

Jacob's color looks much better today. The bruising has started going away and they said that after talking to the neonatal staff about the delivery they are convinced it was from the rough birth. They had a hard time getting him out of me so they think thats why he was so beat up. At least its not an auto immune problem.

The highlight of my day....
JACOB OPENED HIS EYES FOR US! He has been moving around a lot today since he is now off of the paralytic. He was opening his eyes and looking around.

I have been singing "You are my sunshine" to him and he seems to like it. Andy and I sing it to Aidan everynight so I thought it may be familiar to him. It is a Baker tradition.

• He opened his eyes and is moving around
• I changed his diaper, diapers are very wet which is great
• Oxygen levels and stats are great
• Fluid is coming off of his lungs
• Heart Echo looked good

Jacob I am so proud of you. Stay strong baby boy. So many people are praying for you.

Mommy, Daddy and Aidan


  1. Phenominal news Kathy! Thanks for updating your blog. I'm certain its not easy to stop and think about writing during the day. Continued prayers and lots of love.

  2. He's precious!!! Praying for him and the rest of your family.

  3. Jacob is PRECIOUS!

    I'm so glad your day was better! We're praying for that little man, as well as the rest of you. Keep us posted, and we'll be praying.

    Big heart hugs and prayers,

  4. I just found your site through someone who also follows my blog. My daughter had HLHS but it was not diagnosed at her 20 wk ultrasound. You are already ahead because they found it in Jacob! The best advice I received was this: the journey you are beginning will be full of ups and downs. Don't let the bad days bring you to despair but be careful on the good days. It is mentally, emotionally, and physically draining for so many reasons. Enjoy every single moment you have with him. Take lots of pictures and video! Please know that I will be thinking and praying for you as you go down this road, and if you ever need to connect with an HLHS mom I am here. ( God will give you and Jacob the strength to get through whatever lies ahead!

  5. I am so glad that you had a good day and was aloud to change his diaper. I am still praying for you and your family.

  6. He's gorgeous! Congratulations on his arrival! And I'm SO happy to hear he had a great day today! It sounds like things are going in the right direction for your sweet little man! I know you must've melted into a puddle of goo when he opened his eyes for the first time. And changing his diaper? Ya, that's one of the MANY little things that most moms don't value or appreciate. Us heart moms have learned to love those precious little things!

    Can't wait to read your updates and see what God has in store for little Jacob!

    God bless!

  7. Hi Kathy,
    I found a link to your blog through my Sitemeter. Congratulations on your baby boy! He's beautiful! I know how difficult a journey this is, and I'm so glad to see that you are so positive! That is wonderful! I'll be praying for Jacob.

    It's always good to have support in the heart community, so I'll keep checking back for updates. I wish I could personally do something for all these little heart babies.

    Big Hugs,
    Bethany (Emma Kate' mommmy)

  8. Thinking about you. Just requested you as a friend on Facebook so that I can be there for you. Lots of love. xoxo