Friday, March 26, 2010

Prayers Please

Well we knew this would be a rollercoaster ride and it has. Jacob had a very very rough day yesterday. His lungs are very sick and he needs everyone's prayers.

Jacob has fluid in his lungs and now around his lungs as well. The fluid was getting better inside of his lungs but they had to pull back on his diuretic because it was hurting his kidney levels. When they did that, they noticed build up of fluid outside of his lungs. He needs a drug which we all have, its like a natural soap we make. Jacob doesnt have any due to his heart complications. When they gave it to him the first time he did ok but when they tried again his body did not like it and his stats dropped way to low. So he can't get that. So now we have to just wait for him to pee out the fluid from inside of the lungs. As far as the fluid on the outside of his lungs, they may have to put in a chest tube this morning to drain it.

Yesterday he had a very hard time breathing and keeping his o2 levels at a good spot. They had to tweak his vent all day and his oxygen crashed a few times. He crashed once with us right there, this was very scary. They have told us that the way his lungs are right now he could not handle the bypass he would need to be on for surgery. His lungs are very very sick. Until we get them better we have to wait. Waiting puts more strain on the rest of his body.

THey are thinking his surgery will be sometime early next week ut we have to take it day by day.

Last night he had a better night, his stats all stayed at a great range. Please pray the xray turns out better this morning. We need a miracle.

Jacob we love you more than you could ever know. Please stay strong.

Love Mommy


  1. I'm so sorry to hear about the complications. But it's good news that he had a good night ~ good signs for hopefully a good xray. Our family will be praying for your Jacob and for your family.

  2. I will post on my blog that Jacob needs our prayers, I hope you don't mind! There are many people that don't know you that will be thinking of you today. Stay strong. The Lord will not give you more than you can handle.

  3. I am so so sorry to hear that about jacob. It is an amazing roller coaster. One that I wouldn't wish on anyone but the stats are that 4 out of 10,000 births have HLHS. It is such a sad thing to happen to a little helpless little human being but I realized through my loss of Jacob back on 03/02/09 that God will not give you more than you can handle even though you sometimes second guess yourself and God's confidence in you that you can. Keep strong and keep fighting little Jacob.

  4. I am keeping all of you in my thoughts and prayers. It is a roller coaster ride that changes your life forever. I am praying for good x-rays this morning...and of course for more pee (it seems to be a common CHD prayer). I can't tell you how many times I have prayed for pee in the last 6 months, but it is something I never prayed for before. Keep strong and know that Jacob is a fighter too!

  5. I am still praying for him and your family. I know how scary it is to see your little one like that. Just do not give up hope.

  6. Kathy,
    I'm sitting here in the hospital waiting on Olivia to arrive and praying for your family and of course little Jacob. Right now I have lots of free time, so that means lots of prayers for your little man.

  7. Praying for a better X ray - Don't give up - it is amazing how much these little ones can take, and how they bounce back so fast. Praying for a quite day for both you and Jacob.

  8. Your family is in our thoughts and prayers!

    ~The Ashcrafts

    Carepage: babycassiana

  9. I do have a fb friend who traveled this path in a similar way... they had to postpone the surgery till day 8, but the baby did come around and improved, and made it through the surgery and does well now... hope is always there, he is a fighter... and we are all lifting him up in prayer to our GREAT PHYSICIAN... there is love and hugs surrounding you all... stay strong, Joy

  10. Sweet Jacob in is our prayers! Thank you for the post so we can know exactly how to pray. Chase had his surgery when he was 7 days old and I've heard of other heart babies waiting 2 weeks or more for their Norwood. I know this is scary -- our son crashed after a bronchoscopy and needed CPR, chest compressions, etc. This is such a scary journey but just do your best to be there with Jacob -- keep talking to him and reminding him you're there with him through all of this. I will be praying God heals his lungs and opens the door for his first surgery.

    Heart hugs!

  11. We continue to lift you all up in our prayers!

    ~Stephanie and Braeden(HLHS)