Sunday, February 13, 2011

CHD Awareness 2011

CHD Awareness week is coming to an end tomorrow...

but don't worry, I intend on spreading awareness to everyone I know 365 days a year! Our children need us to be their voice. Please help me in educating all of your friends and family about Congenital Heart Defects and lets help find a cure for this silent killer. Its simple. Just let people know that 1 in 100 babies are born with a CHD.

Awareness=Funding. Funding=HOPE!

We love you baby Jacob. I will never stop fighting for you!

Please take a moment to watch these videos and learn about the #1 birth defect!

1 comment:

  1. Dear Baker Family,

    We need your help! In 2009, Genetic Alliance was awarded a cooperative agreement to implement sections of the Prenatally and Postnatally Diagnosed Conditions Awareness Act. Through this agreement we launched the Congenital Conditions Program, a program that focuses on connecting families who receive a diagnosis for their child prenatally or within the child’s first year of life with information and support. We are currently developing multiple publications for this program; one of these is a compilation of stories that focuses on receiving a diagnosis of a congenital condition.

    Genetic Alliance needs your story about receiving a diagnosis of a congenital condition for this compilation! We recognize the importance of sharing stories as a way to share one’s experiences and believe that yours will make a great addition to the publication. By collecting such stories, we believe we will obtain an understanding of the strengths and weaknesses of the current system of information and support for families receiving a diagnosis and where improvements might be made in the future.

    You can learn more about the Congenital Conditions Program and the stories compilation at All stories must be submitted be February 28th. To find out how to share your stories for inclusion in the publication, please email Alyson Krokosky at

    Thank you,

    Programs Intern
    Genetic Alliance | 4301 Connecticut Avenue, NW | Suite 404 | Washington, DC 20008
    Phone: 202.966.5557 x240 | Fax: 202.966.8553 |