We made it to Philly. Jacob was great today. We stopped 3 times to give him a break. He started out fussy but was asleep most of the trip. It is so nice knowing CHOP is just down the street if we need them.
The Ronald McDonald House was full but we were able to get the Comfort Suite for a few nights. Hoping the RMH has room soon.
Jake has a busy day planned for tomorrow. He has a cardiologist appointment at 8:45am with Dr. Szwast. They will do a echo, chest xray and EKG. He also may need an MRI this week. Thursday we have a pulmonologist appointment.
I am also hoping to get with the nutritionist while we are here about his belly issues.
For right now we are relaxing in our room. Thank you for all of the prayers and support. I will update tomorrow after his appointment.