Safe and Sound in Morgantown

We have made it to Morgantown, WV. We decided to stay here for the night because there is a children's hospital nearby. Thank you to Kim Corbin. The room is beautiful.

Jacob did well overall. He sleep some but surprisingly was awake quite a bit. He fussed a little but did not cry heavy at all. We stopped once along the way to give Jake a little break and change his diaper. Around the 3 hour mark when we were just about here Jacob was looking a little pale and uneasy so I am glad we decided to stop here. I think 3 hours is his limit.

As soon as we got into the hotel room I checked his SATs and his heart rate and it was perfect. He is nice and pink and sleeping soundly right now.

Jake after a long road trip.

We really appreciate all of the prayers and kind words we have received. Our family is very blessed to have so many people who care about our sweet baby boy. I will post when we get to Philly and daily while in the hospital.

One final note:
I have a heavy heart today. Another one of Jacob's buddies from CHOP passed away yesterday. The Marrone family was very dear to us. Our children were at CHOP the same time. Mia also had HLHS like Jacob. Her passing came as a shock. This life can be such a hard one. During our pregnancy Jenn, Stacey, Laura and I became very close. We then met at CHOP with our children. Now baby Mia and baby Gwen were called to heaven. My heart breaks everytime I hear of a baby dying but even more so to these babies since we were so close. Please pray for their families as they go through this difficult time. Thank you.