Look how far he has come just since August when he came home from his Glenn...
AUGUST 2010
8am: Lasix (0.6ml), Captopril (3 ml), Prevacid (2 ml), 1/2 Baby Aspirin, Bethanichol (0.6ml), Diuril (1.2 ml)4pm: Lasix (0.6ml), Captopril (3 ml), Bethanichol (0.6ml)
8pm:Prevacid (2 ml), Diuril (1.2 ml), Sodium Suppliment (2.5 ml), Aldactone (1.2 ml)
Midnight: Lasix (0.6ml), Captopril (3 ml), Bethanichol (0.6ml)
He was also still on his overnight feeds.
NOVEMBER 2010
8am: Captopril (3 ml), Prevacid (3 ml),4pm: Captopril (3 ml), 1/2 Baby Aspirin
8pm: Prevacid (3 ml)
Midnight: Captopril (3 ml)
No more overnight feeds.
Started baby food and day feeds increased to 190mls per feed
Have I mentioned how proud I am of Jacob. Wow! He has come so far in just a few months. Thank you Jacob for being so strong. I am so blessed to have you as my son. I love you more than you will ever know.
Wow Kathy, that's awesome!!! Way to go Jake! We're getting Bodie there as well. He's still on 5 meds, but because I combine the Sildenafil, Enalapril, Propanalol (pill) and Aspirin (pill) all into one syringe, he's down to only 5 syringes a day (the Propanalol is still 3x a day and I can't combine his last med, the Digoxin, with the rest, since it has to be at room temp) - it feels like NOTHING compared to how many meds I used to have to prep! Hoping to be off Dig soon and Propanalol next spring, so we'll be down to only 3 meds eventually as well!
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